Mother's Lap

It's been one week since Jordan received his infusion of T-cells; one week since the only thing that can save him nearly took his life.  One week that lasted a very, very long time.

Over the past day and a half Jordan has continued to improve--moving his free arm more regularly, following faces more quickly and responsively with his eyes.  His skin is still yellow from the shock to his liver (resulting in an increased concentration of bilirubin), and his right eye retains evidence of the blood vessels that exploded there last week, but otherwise he is back to looking like the Jordan we know.

With Jordan's ongoing stability, Heidi was able to hold him on her lap for the first time since the infusion.  She  stared at him for quite a while, seemingly afraid to break his gaze; and every once in a while she smacked her lips to see if Jordan would imitate her.  His body is not yet strong enough for that game but he did the best he could and she could see him trying.  That was enough for today.

Last night, Heidi and I were able to both leave the hospital for a few hours together and take Aaron to the Seattle zoo.  We desperately needed the time away and the chance to walk in the warm summer air was revitalizing.

Today I drove down to Portland to be with my other children who just finished their last week of school.  Tomorrow we will gather more of our worldly possessions and get ready to continue our summer adventure in Seattle.

The road ahead is a long one but one we are grateful to have the opportunity to travel it.  While Jordan's Adenovirus remains present with a very high copy count, his secondary virus appears to have abated or even  vanished altogether.  We are hoping for confirmation that this secondary virus was destroyed and that his T-cells are growing within the next few weeks.

In the meantime, we will continue to take every day as it comes.