Saturday, June 8, 2013

Questions

Going into another day there are many questions left to be answered.  Why did Jordan's body react so significantly to the infusion?  Was it Jordan's body reacting or antibodies from some of the other blood products Jordan received?  If he needs more T-cells from Aron's frozen "product", which in its frozen state can remain viable for up to a year, how can we protect against the risk of another reaction?  How long do we wait to see if the T-cells that did make it into Jordan's body take hold before trying other potentially risky measures?

With a virus count that appears to be essentially the same as Monday's, we are hoping the T-cells are at work.  We received confirmation Friday that Aaron did in fact have the Adenovirus and so we have even more reason to believe some mature, Adenovirus-trained cells made it into Jordan's body.  In the best case, the virus copy count will begin to fall while the engraftment takes hold, and then the newer T-cells will get trained at the Thymus and go out to finish the job.  It is unlikely there are enough mature Adenovirus trained T-cells to actually eradicate the virus on their own.

We are also left with questions about Jordan's future.  His movement and personality get stronger every day, but we are still not able to get the MRI necessary to see if Jordan may have suffered a stroke or had a seizure as a result of this event.  Spontaneous body movements since the infusion indicate one or the other of these may have occurred.  And we continue to question how long Jordan will be on the dialysis machine.  While Jordan can live on a dialysis machine for many years, the idea of him not being able to manage his own fluids, and the potential for needing another transplant down the road is concerning.  The doctors tried to see if Jordan's kidneys could handle fluid on Thursday without any luck; they will try again in a week or so.

Today, however, Jordan is strong enough to finally play the game of smacking his lips to mimic others.  He remains patient and resilient and a great joy to be around.  His ability to hang on and push forward is a testament to many things, including the strength of the human body and soul, the power of faith and prayer, and the reality that he has more to do while he is here.




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