Another Rough Day for Jordan
October 24, 2012
Today was a rough day for Jordan. When I got there today, Jordan was still struggling with his DeSats and when that would happen his heart rate would dip quite a bit. The doctor has no idea why all of a sudden his heart rate slows way down when he DeSats. It is scary because he goes pale and the nurse snaps him up, increases his oxygen, and gets him back to breathing.
They have also found fluid around his kidney's. I don't remember what the technical term is for this, but it is something where the bladder re fluxes back into the kidney's. However they can't send him down to be tested for this in his current condition. They are giving him an antibiotic once a day in hopes that it won't turn into a urinary tract infection and can deal with this later.
So, the doctor ordered Jordan to have an EEG or electroencephalogram test. This is to check for possible seizures. It measures the electrical activity of the neurons in the brain. It can tell you if there is abnormal electrical activity in the brain. It is just one more avenue to test and hopefully rule out or give us answers. They glue wires in different areas of the head. I talked to him and he held on to my fingers while the technician glued each one on. She wrapped his head in gauze and tape. I was so glad she did. He doesn't look near as scary and he won't be trying to pull any of them off. This test lasts for 24 hours and he is videoed during the whole process. He has handled it pretty well.
Jordan struggled with sleeping all day. Every time he would start to fall into a deeper sleep he would DeSat and his heart rate would dip. He could not get a decent nap. Finally I was able to get him in a good position and he slept for 3 and a half hours. I did everything I could to not move even though parts of me were aching or falling asleep. The poor child finally got a good rest. YAY!
So, I feel like I listed all the struggles of the day only because they did out number the good today. However, his success of the day was that he did not have to be suctioned as much. He is starting to handle his secretions better. He is still swallowing here and there as well. It would be a great hurdle if we continue to see him handle his secretions better and better.
Ryan and I have decided we feel like we are in the TV show "House." Our child is suffering from something no one can quite put their finger on and figure out. We have brilliant doctors and nurses who are trying to figure out what could possibly be going on with his little body waiting for the break where something manifests and they are able to put all the pieces together. We hope that happens sooner than later and that we can be that success story.
We love this little boy so much and admire his perseverance and strength. Here is his photo of the day:
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To me it looks like a football helmet with his nasal canula around his nose. He also has football PJ's on. It just looks like we started Halloween a little early:)
***When I got home tonight there were cookies and a loaf of bread on my door step. Thank you to whomever left those for us!
They have also found fluid around his kidney's. I don't remember what the technical term is for this, but it is something where the bladder re fluxes back into the kidney's. However they can't send him down to be tested for this in his current condition. They are giving him an antibiotic once a day in hopes that it won't turn into a urinary tract infection and can deal with this later.
So, the doctor ordered Jordan to have an EEG or electroencephalogram test. This is to check for possible seizures. It measures the electrical activity of the neurons in the brain. It can tell you if there is abnormal electrical activity in the brain. It is just one more avenue to test and hopefully rule out or give us answers. They glue wires in different areas of the head. I talked to him and he held on to my fingers while the technician glued each one on. She wrapped his head in gauze and tape. I was so glad she did. He doesn't look near as scary and he won't be trying to pull any of them off. This test lasts for 24 hours and he is videoed during the whole process. He has handled it pretty well.
Jordan struggled with sleeping all day. Every time he would start to fall into a deeper sleep he would DeSat and his heart rate would dip. He could not get a decent nap. Finally I was able to get him in a good position and he slept for 3 and a half hours. I did everything I could to not move even though parts of me were aching or falling asleep. The poor child finally got a good rest. YAY!
So, I feel like I listed all the struggles of the day only because they did out number the good today. However, his success of the day was that he did not have to be suctioned as much. He is starting to handle his secretions better. He is still swallowing here and there as well. It would be a great hurdle if we continue to see him handle his secretions better and better.
Ryan and I have decided we feel like we are in the TV show "House." Our child is suffering from something no one can quite put their finger on and figure out. We have brilliant doctors and nurses who are trying to figure out what could possibly be going on with his little body waiting for the break where something manifests and they are able to put all the pieces together. We hope that happens sooner than later and that we can be that success story.
We love this little boy so much and admire his perseverance and strength. Here is his photo of the day:
.jpg)
To me it looks like a football helmet with his nasal canula around his nose. He also has football PJ's on. It just looks like we started Halloween a little early:)
***When I got home tonight there were cookies and a loaf of bread on my door step. Thank you to whomever left those for us!
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