Peaceful Days

Peaceful Days
October 26, 2012

The last 2 days have been fairly peaceful.  Jordan has had his usual DeSat episodes but not quite as many.  The nurses have been working with Ryan and I teaching us how to suction him.  I can handle suctioning him through his nose and with a tube called a "little sucker."  It is less invasive. The one that kills me is using a small catheter (tubing)  and feeding it over his tongue down the back of his throat till he gags and suction his secretions that pool there.  Each time I have done it makes me gag with him.  Hopefully soon it won't bother me as much. 

Brooklyn came and visited and helped out with Jordan last night.  We also got to bathe him as well.    It was so good for her to spend some time with him and I.  She is such a little mother and is so nurturing and sweet with Jordan.  He stared and her and held her hand tightly.  It was sweet.

Tonight we took our Infant CPR class.  We had Michael join in as well.  The nurse spent some extra time with us afterwards and discussed how Jordan would be a little different in his needs.  She also took time to answer questions and talk about the tracheotomy.   We hadn't told Michael about it yet, but it was perfect for the nurse to be there to answer questions and take the scariness of it away.  Michael took it in stride and was not shocked, mortified etc. about it.  Kids can handle things better than you give them credit for.  Amazing!

So, we decided to watch him for the next week.  If he improves we will keep pushing off the tracheotomy surgery.  If he does not and remains the same we will have the surgery the end of next week.  

We hope the weekend continues to go as well.  Here's the pictures from yesterday: